Story about Apert Syndrome .

My daughter

Dec 21, 2015

By: Joannie


My daughter born in april 2006 with Apert. No diagnostic antenatal. She got 9 surgery since now: 

- craniofacial in 2006

- hands in 2007 (x4)

- hands in 2009 (x2)

- hands in 2012

- and ORL in 2012

She has 4 fingers to each hands.

Surgerys next: 2016-2017 hands => 5 fingers

                       2018 => lefort 3

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