Story about Beckwith-Wiedemann Syndrome .

Alexis

May 18, 2017


We love our wee girl. We have raised her since she turned 2. She has come a long way since then. She had a rocky start to life with a major operation as a newborn and another at 4yo, 3 1/2years on peg feeds. She wears a lifted shoe. Visits to Paediatrician, ultrasounds still.

She is a quiet caring wee girl,  loves playing with her brother and sister.

Loves school and all the kids love her too.

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