Elyse's interview
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How did all start?
I had to do my annual physical for work
Do you already have a diagnosis? How long did it take you to get it?
Diagnosis was quickly handled after another physician saw my blood test results
For what medical specialties have you been treated? What has been the most useful specialty for your?
hematology/oncology
What has been the most useful thing for you so far?
accepting that life will not be what I had planned going forward and making the most of every single day.
What have been your biggest difficulties?
fatigue/brain fog/side effects of medication
How has your social and family environment reacted? Have your social or family relationships changed?
yes.
What things have you stopped doing?
going out at night, driving long distances, working
What do you think about the future?
I'm looking forward to every day, adapting to whatever limitations i have now and working towards alleviating them in the future.
So far, which years have been the best years in your life? What have you done during them?
best years? the prior 8 years before diagnosis.
What would you like to do if you didn’t have your condition?
be back at my old job functioning at a very high level professionally
If you had to describe your life in a sentence, what would it be?
rich and full even with adjustments
Finally, what advice would you give to a person in a similar situation?
don't quit...adapt adjust and overcome!
