- Intracranial Hypertension
- Interviews
Denise's interview
How did all start?
started in 2013 with a headache that woke me up from a sound sleep crying was taken to hospital mri and lumbar puncture ordered opening pressure was 47 at the time
Do you already have a diagnosis? How long did it take you to get it?
was diagnosed after lumbar puncture
For what medical specialties have you been treated? What has been the most useful specialty for your?
neurology
What has been the most useful thing for you so far?
my doctor and neuro surgeon
What have been your biggest difficulties?
brain fog short term memory concentrating balance issues
How has your social and family environment reacted? Have your social or family relationships changed?
lost all my friends and all romantic relationships have failed so have given those up
What things have you stopped doing?
socializing
What do you think about the future?
think it sucks pretty much
So far, which years have been the best years in your life? What have you done during them?
from my 20s to early 40s everything i wanted to do
What would you like to do if you didn’t have your condition?
travel the world
If you had to describe your life in a sentence, what would it be?
debilitating and very tiring
Finally, what advice would you give to a person in a similar situation?
never give up you have to keep going
