Julie's interview
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How did all start?
I was diagnosed at birth.
Do you already have a diagnosis? How long did it take you to get it?
Diagnosed at birth.
For what medical specialties have you been treated? What has been the most useful specialty for your?
Orthopedic
What has been the most useful thing for you so far?
Surgery
What have been your biggest difficulties?
Looking over my shoulder is impossible I have to turn my whole body.
How has your social and family environment reacted? Have your social or family relationships changed?
I was picked on as a child but have had great relationships as an adult.
What things have you stopped doing?
Lifting things. Trying to back up a car!
What do you think about the future?
It’s getting harder as I age.
So far, which years have been the best years in your life? What have you done during them?
When I was having my kids and they didn’t have it.
What would you like to do if you didn’t have your condition?
Wear turtle necks!
If you had to describe your life in a sentence, what would it be?
I am loved!
Finally, what advice would you give to a person in a similar situation?
Make sure your physician checks other body systems for deformities .
