Joyce's interview
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How did all start?
I spent many hours going back and forth to Dr because of severe rash and pain
Do you already have a diagnosis? How long did it take you to get it?
took over a year
For what medical specialties have you been treated? What has been the most useful specialty for your?
I have separate specialists for all my diseases and these are all auto immune
What has been the most useful thing for you so far?
being on steriods to control the lupus
What have been your biggest difficulties?
not being able to be outside during our winters
How has your social and family environment reacted? Have your social or family relationships changed?
most family are naive to what is wrong
What things have you stopped doing?
most things invoving big crowds
What do you think about the future?
I am fine with what I have been dealt and have learned to adjust
So far, which years have been the best years in your life? What have you done during them?
this year my skin condition is better and taking a short trip so things are great
What would you like to do if you didn’t have your condition?
do more travelling
If you had to describe your life in a sentence, what would it be?
the glass is half full
Finally, what advice would you give to a person in a similar situation?
never give up
