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JF 's story

Oct 31, 2018

By: Jean-François

Year Condition Began: 1982

Maffucci Syndrome
Maffucci Syndrome
Hi , i'm a 39 yrs old Mafucci , living in Ghent , Belgium
I was diagnosed when i was 3 yrs old
I underwent 28 surgeries , mainly to lenghten my bones ( when i was minor) and amputate echondromas in the hands ( in my 20s). Now i encounter big troubles with my hands due to big enchromas & amputations.
but i dont give up ;)
peace , JF

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