A Ramsay Hunt Syndrome story
Jul 15, 2017
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My mum has been diagnosed with RHS just recently. She was initially misdiagnosed but I wasn't happy with what she had been told so turned to Dr Google and found out myself what it was which was then confirmed by an ENT specialist. She has finished her courses of steroids and antiviral tablets. She has been on high doses of Lyrica and Tramadol. Her right side of her face is paralysed. She has incredible pain in her ear still but worst of all is the pain on her face!! Nothing is relieving the pain whatsoever and it is really starting to affect her mental wellbeing I'm afraid. It is very distressing seeing a loved one go through something so painful and disfiguring without being able to help!! I am offering her all my support and positivity but unfortunately everything I am reading does not sound too positive. I'm yet to read about anyone fully recovering. I don't have the heart to tell her as she is very emotional at the moment but I want to know how best to support her. I'm also wondering if there is any support groups on Facebook or elsewhere that we could get information and help from?
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