A little about me

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HELLO EVERYONE MY NAME IS HEATHER AND I HAVE STARGARDT'. I STARTED TO NOTICE CHANGES IN MY VISION WHEN I WAS 16 YEARS OLD I WAS DIAGNOSED AT THE AGE OF 19 I AM NOW 29 YEARS OLD AND A MOTHER OF 4.

AT THE AGE OF 21 MY VISION WAS 20/400 IN BOTH EYES.

I AM VERY SENSITIVE  TO LIGHT NOW. 

I USE MY PERIPHERAL VISION TO SEE. 

I DO NOT DRIVE.

I AM STILL  TRYING TO COPE AND LIVE WITH THIS NASTY EYE DISEASE  AND STAY POSITIVE  BUT IT GETS VERY HARD AND DEPRESSING   AT TIMES ESPECIALLY  WHEN PEOPLE DONT UNDERSTAND THE EYE DISEASE  OR WHEN I CANT DO SOMETHING WITH MY KIDS  BECAUSE OF THIS EYE DISEASE,.  I TRY MY HARDEST  TO NOT LET IT STOP ME.

AT TIMES I WISH I HAD SOMEONE TO TALK TO WHO ALSO HAS STARGARDT'S, I FEEL SO ALONE IN THIS BECAUSE NO ONE UNDERSTANDS. 

RECENTLY  I DEVELOPED  AN "EYE FLOATER " IN MY LEFT EYE SO I WENT AND GOT IT CHECKED AND THE DOCTOR TOLD ME IT WAS BECAUSE OF MY STARGARDT'S DISEASE.

 

I AM PRAYING AND VERY HOPEFUL THAT ONE DAY THEY FIND A CURE FOR TREATMENT FOR STARGARDT'S.

 I WANT TO SEE MY BABIES GROW UP AND BE THERE FOR THEM IN EVERY WAY.

PLEASE, FEEL FREE TO ASK ME ANY QUESTIONS :)