It began with a big event at the end of 2013. I had a stroke (CVA) and lost partial sight. Stayed in the hospital for a couple of days and tried to continue life. But is was a struggle. Getting used to the consequences of the stroke but also the recurrent pains began. I had those strange muscle pains now and then for years before but after the stroke they began to occur more often and more painful. I started treatments for RA, Vasculitis and Sarcaidosis. Used MTX, Prednison and so on. I survived on Prednison and Naproxen for over 2 years. But even after those years it had to take till 2017 before something major happened.
I was not diagnosed with WD before july 2017. Got in the hospital with severe heart problems. Had an emergency surgery where they replaced my aortic valve. The tissue what is taken away was also tested for WD. After three weeks it turned out to be WD.
I had ceftraxion for a couple of weeks. A installed picc line was used for that. After 4 weeks I could go home. There I took cotrimaxozol for over a year, almost.
I was not used to listen to my body. I kept going on. Trying to survive mostly.
I trusted the docters so far. Can understand that they missed WD during the diagnosis periode.
Listen to your body and trust the signals. Never give up. You do not need to be a doctor to take the body signals seriously
