POMC (Pro-Opiomelanocortin Deficiency)
Dec 14, 2015
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My son was diagnosed with POMC before his 2nd birthday in 2010.
As far as we know he is the only one in the USA but we are looking. because I have created POMC Island I have been contacted by 3 other families.http://www.facebook.com/P.O.M.C.Island
The National Institute of Health (N.I.H.) has given him a second Dx of Sim1
He has a long list of health issues.
Adrenal Insuficciency
Hypothyroidism
Panhypopituitaryism
Hyperphagia
Hypothalamic disorder
just to give the top 5
Nate has a great joy about him
1 comment
Thank you for what you do! My son's name is also Nate (Nathan).
I am an 18 year survivor.
Commented 8 years ago Susan 90
