Story about Alternating Hemiplegia Of Childhood .

Lexi's life

Aug 24, 2017

By: Lexi


Lexi has had epilepsy since she was 24hrs old and AHC spells since the first week of life. She was diagnosed with the ATP1A3 d801n mutation when she was 3.5yrs old and since then she has been on flunarizine which helped her some. She started solumedrol infusions in 2015 and her spells have lessened tremendously since then. She is followed by the Duke AHC clinic and they have been amazing. 

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