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Story about Bartter's Syndrome .

Conception to birth

May 18, 2017

By: Conner2016

Bartter's Syndrome
My first brother was born early and the doctors didn't know what to do for him. He passed away after several days I the NICU.  Because of him, I live.  Genetic testing prepared the physicians for what to expect when my mom started once again to have polyamniohydrosis.   I am one year old and get tube feed only at night now.  Mom still administer medication throughout the day.  I am below the 10th percentile in growth and weight.  I can sit up for awhile but not pull myself up to a sitting position and it will be a long time until I walk.

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