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Story about Beckwith-Wiedemann Syndrome .

12 year old daughter w BWS

May 18, 2017

By: Melissa Perez

Beckwith-Wiedemann Syndrome

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My daughter was born w BWS, born w adrenal tumor, and later developed a thymus tumor, has hypoglycemia, JIA, and HLH/MAS and also crossed hemihypertrophy.

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