Story about Cardiomyopathy , Anxiety, Bile Acid Synthesis Disorders, Central Pain Syndrome, Chronic Fatigue Syndrome / M.E., Cluster Headaches, CRPS Complex Regional Pain Syndrome, Depression, Dupuytrens Contracture, Fitz Hugh Curtis Syndrome, Irritable Bowel Syndrome, Mal de debarquement, Migraine, Obesity, Plantar Fascitis, Psoriasis, Restless Leg Syndrome, Scoliosis, Sleep Apnea, Spinal Stenosis, Tinnitus, Ventricular Septal Defects.

everyone dies

Aug 11, 2023

By: Cheri

Year Condition Began: 2018

Cardiomyopathy

Anxiety Bile Acid Synthesis Disorders Central Pain Syndrome Chronic Fatigue Syndrome / M.E. Cluster Headaches CRPS Complex Regional Pain Syndrome Depression Dupuytrens Contracture Fitz Hugh Curtis Syndrome Irritable Bowel Syndrome Mal de debarquement Migraine Obesity Plantar Fascitis Psoriasis Restless Leg Syndrome Scoliosis Sleep Apnea Spinal Stenosis Tinnitus Ventricular Septal Defects

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My family dies of heart failure. Genetic element with a fault on the TTN gene. Mom and youngest brother dead. Uncle with a very low ejection fraction. Maternal grandmother died of it. I'm next.

Started to improve with Entresto but had the rate adverse reaction of my lips, tongue, and throat swelling. These improvements will ne lost since i can no longer take the drug

I cannot eat a heart-healthy diet because I also have gastroparesis.

I have asked many doctors and dieticians for help, but it seems that there is no data on managing the two conditions. I pretty much expect to die very early.