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Living with Cold Urticaria. How to live with Cold Urticaria?

Can you be happy living with Cold Urticaria? What do you have to do to be happy with Cold Urticaria? Living with Cold Urticaria can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Cold Urticaria

Living with Cold Urticaria

Living with Cold Urticaria


Cold urticaria, also known as cold hives, is a condition characterized by the development of itchy hives or welts on the skin after exposure to cold temperatures. Living with cold urticaria can be challenging, but with proper management and lifestyle adjustments, it is possible to minimize symptoms and lead a fulfilling life. Here are some tips to help you live with cold urticaria:



1. Avoid Cold Triggers


Avoiding exposure to cold temperatures is crucial in managing cold urticaria. Bundle up in warm clothing, especially in cold weather, and use gloves, scarves, and hats to protect your extremities. Take warm showers instead of hot ones and avoid swimming in cold water. Additionally, be cautious when handling cold objects or consuming cold foods and drinks.



2. Maintain a Stable Body Temperature


Keeping your body temperature stable can help prevent flare-ups of cold urticaria. Dress in layers to regulate your body temperature and avoid sudden temperature changes. Use blankets or heating pads to stay warm during colder months. It may also be helpful to keep your home at a comfortable temperature.



3. Use Protective Measures


Applying a barrier cream or petroleum jelly to exposed skin can provide a protective layer and reduce the severity of symptoms when exposed to cold. Wearing gloves or using hand warmers can help protect your hands. Consider using hypoallergenic laundry detergents and fabric softeners to minimize skin irritation.



4. Take Medications as Prescribed


If your symptoms are severe or significantly impact your quality of life, your doctor may prescribe medications to manage cold urticaria. Antihistamines can help relieve itching and reduce the allergic response. In some cases, your doctor may recommend other medications, such as leukotriene inhibitors or corticosteroids, to control symptoms.



5. Educate Yourself and Others


Learn as much as you can about cold urticaria to better understand your condition and how to manage it effectively. Share information with your family, friends, and coworkers to raise awareness and help them understand the challenges you face. This can foster a supportive environment and reduce misunderstandings.



6. Seek Support


Living with a chronic condition like cold urticaria can be emotionally challenging. Consider joining support groups or online communities where you can connect with others who share similar experiences. Sharing your feelings and experiences with others who understand can provide valuable support and coping strategies.



7. Communicate with Healthcare Professionals


Regularly communicate with your healthcare professionals, such as allergists or dermatologists, to discuss your symptoms, treatment options, and any concerns you may have. They can provide personalized advice and adjustments to your management plan based on your specific needs.



8. Be Prepared for Emergencies


In severe cases, exposure to cold temperatures can lead to a potentially life-threatening allergic reaction called anaphylaxis. Carry an epinephrine auto-injector (EpiPen) with you at all times and make sure your family, friends, and coworkers know how to use it in case of an emergency. Prompt administration of epinephrine can be lifesaving.



Living with cold urticaria requires proactive management and lifestyle adjustments to minimize symptoms and prevent complications. By following these tips and working closely with your healthcare team, you can lead a fulfilling life while effectively managing your condition.


Diseasemaps
11 answers
I think it can be possible to be happy with any kind of condition, but it can be very hard. It's depressing to not be able to take an apple or orange out of the refrigerator and peel or cut it. I do find myself getting very depressed because of my CU. But I still do have days where I am happy, and not so sad about living with CU

Posted Feb 27, 2017 by Ettienne 1295
This is a tough question. Most people live pretty diminished lives because of CU. Hopefully you live in a moderate climate. If you have all 4 seasons where you live, expect to spend a few months out of the year mostly in the house or housebound. If you were an active person, it's very hard to continue an active lifestyle with CU. It's depressing and completely life altering. My life has unfortunately, never been the same. Find happiness in other aspects of your life. I will never be truly happy unless this goes away.

Posted Mar 20, 2017 by Jennifer Entwistle 1155
For me I'm stuck in my home most of the year which is depressing but I live in a really cold area, what I do to keep occupied is I have taken up crocheting and attempting to knit, I like writing, but mostly I clean, I have family over and just try to make the best of each day. I'm sure if I lived somewhere that I could jump in a vehicle year round I would be happy but as of now I feel trapped and most times depressed. But during the summer I can get outside some days. Over all I'm happy and still everyday is a learning experience living with CU.

Posted May 4, 2017 by Paulette 1000
I get extremely uncomfortable, itchy, and swell up when I go out in the winter with CU but it doesn't stop me. I have had it for years so I am just used to it now, it doesn't get in the way of my life, besides losing an ROTC scholarship when I was first diagnosed because I could not pass the medical waiver :/ I still go skiing, sledding, and running in the winter, just for shorter periods of time with breaks to warm myself up. If you put effort into moving on, I have found it becomes a small annoyance- from a big picture perspective. The most frustrating part is explaining to people why you don't want to go out into the cold "I am allergic to the cold" is usually responded to with "hahaha yeah, me too!".

Posted Jul 20, 2018 by Larissa 100
Avoid going out in cold weather. Avoid going outside in the rain. You may want to avoid swimming. Take antihistamines.

Posted Sep 24, 2018 by 6000
Take precautions. Keep working with your allergist to work out the most pre-emptive plan for its control and don't ;et it stop you doing the things you want to do.

Posted Sep 28, 2018 by Rachel 3020
You will notice certain habits you will have that others won't have. Such as holding bottles by the cap because the bottle itself is cold, or holding cold bowls/cup differently (like using your sleeve to hold a cup at the bottom).
People are GOING TO FORGET about your allergy and may offer you things like going out in the cold weather or asking you to do things that involve the cold (ex. I was asked to get bottles out of the bottom of a cooler filled with water and ice).
There are a million small things that you will do differently but few are things people will notice.

Posted Oct 26, 2018 by Victoria 3550
Each case of CU is so different.

Posted Jan 20, 2020 by Heather 2500
Take no chances ! Bundle up ,carry a blanket in your car during cold weather, epi pen, auto start your car & keep hand warmers on hand.

Posted Feb 13, 2020 by Deana 3050
Always be prepared when you leave your house , keep extra clothes, umbrella, gloves in your car at all times. Know what triggers you personally and let those around you know about your condition. If you remember this you can have a pretty normal life

Posted Jul 9, 2020 by Jami 1800

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Parents noticed my hives at age 5.  Got several allergy tests, including food tests.  I remember at one time they thought I was allergic to hotdogs.  Somehow they figured it out.  
Cold Urticaria stories
At age 14 I hopped out of a pool and had welts all over my body. My uncle (a Dr) said it looked like Raynaud's disease. Later a skin speciliast diagnosed it as Cold Urticaria. I tried anti-histamines for a while but hated the side effects. I prefer t...
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I developed cold urticaria after a long viral infection I believe.
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i didn't experience any symptoms of cold urticaria until I was 8 years old. I grew up in Upstate Ny and spent a lot of time playing outside and in the snow. The first time I ever had a reaction, I was sledding with a few friends, and went inside and ...
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I've had OCD my whole life, but when I was 7 or 8, I started getting constant headaches. I went to lots of doctors, and they still can't figure out why I get so much unbearable headaches. Around the same time, I developed Cold Urticaria

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