Story about Dysautonomia / POTS .

Fighting

Jul 19, 2016

By: Samm


Three years ago I was finishing my third year of university for social work and child and youth care. I was an avid hiker, easily walking 10-15 kilometres of rugged terrain a week. I spent hours a day hula hooping, as I often performed with fire. Then, suddenly, everything changed. I developed a staph infection from my IUD, my doctor hadn't read the ultrasound which could have caught the infection in time. It progressed into sepsis and I was hospitalised from acute liver failure. Even after my release it took time for the hepatic encephalopathy to abate, and I had to drop out of university.

Although my liver function came back with no lasting damage, my health didn't seem to improve. I had developed severe tachycardia which worsened when I stood. I began fainting multiple times a day. I had severe sweating, day and night, which in addition to constant urination resulted in unyielding dehydration. My fine motor skills declined, and I lost all feeling in my feet. The symptom list is unending.

I, thankfully, now have a dedicated doctor who diagnosed me with POTS and IST amongst other illnesses. However, treatment has only slightly lessened some symptoms and I have replaced my once active and fulfilling days with appointments, tests, and a search to find what my doctor calls "the underlying, root cause illness" because my current diagnoses fail to answer all the debilitating symptoms. 

 

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


Prevalence of Dysautonomia / POTS

What is the prevalence of Dysautonomia / POTS?

Dysautonomia / POTS diagnosis

How is Dysautonomia / POTS diagnosed?

Dysautonomia / POTS causes

Which are the causes of Dysautonomia / POTS?

History of Dysautonomia / POTS

What is the history of Dysautonomia / POTS?

ICD9 and ICD10 codes of Dysautonomia / POTS

ICD10 code of Dysautonomia / POTS and ICD9 code

Celebrities with Dysautonomia / POTS

Celebrities with Dysautonomia / POTS

Dysautonomia / POTS and depression

Dysautonomia / POTS and depression

What is Dysautonomia / POTS

What is Dysautonomia / POTS