- Ellis Van Creveld Syndrome
- Interviews
lee's interview
How did all start?
it started at birth in 1964
Do you already have a diagnosis? How long did it take you to get it?
yes
For what medical specialties have you been treated? What has been the most useful specialty for your?
Heart condition, Polydactal digits hands and feet, Asthma, legs,back surgeries
What have been your biggest difficulties?
learning to walk three times
How has your social and family environment reacted? Have your social or family relationships changed?
some
What things have you stopped doing?
riding horses
What do you think about the future?
unsure
So far, which years have been the best years in your life? What have you done during them?
my 20's and 30's Had my son and lived life like every moment counted
What would you like to do if you didn’t have your condition?
Go back to School and Finish
If you had to describe your life in a sentence, what would it be?
I hate my heart.
Finally, what advice would you give to a person in a similar situation?
Live like every day was your last, because with this we are not promised anything.
