- Erythromelalgia
- Interviews
Roger's interview
How did all start?
Itchiness in webbing of my hands
Do you already have a diagnosis? How long did it take you to get it?
Yes .. three weeks
For what medical specialties have you been treated? What has been the most useful specialty for your?
Heart attack 2002 .. two stents inserted. Stenosis of the vertebra fusion 2009 & 2012 ..
What has been the most useful thing for you so far?
Ciclosporin
What have been your biggest difficulties?
Coping in hot weather
How has your social and family environment reacted? Have your social or family relationships changed?
With compassion & not really although can’t participate in certain social events.
What things have you stopped doing?
Exercising
What do you think about the future?
It’s going to be difficult iro life style changes
So far, which years have been the best years in your life? What have you done during them?
Twenties
What would you like to do if you didn’t have your condition?
Travel
If you had to describe your life in a sentence, what would it be?
Can’t think of one
Finally, what advice would you give to a person in a similar situation?
Do wherever it takes to try lesson the adverse effects