Alison's interview
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How did all start?
have always had it since i was 14 but thought it was migraines but it got worse and was diagnosed age 40 now im 48 and tried indo for a year ,worsed year of my life put on pizotifen for the past year now its not working :( now wot ??
Do you already have a diagnosis? How long did it take you to get it?
34 years it took :(
For what medical specialties have you been treated? What has been the most useful specialty for your?
pills that dont work
What has been the most useful thing for you so far?
pizotifen but are now not working
What have been your biggest difficulties?
going out , sunshine ,noise ,smells, certain sounds go through me :(
How has your social and family environment reacted? Have your social or family relationships changed?
family have been ace they are always there for me x
What things have you stopped doing?
living
What do you think about the future?
uncertain
What would you like to do if you didn’t have your condition?
get a job
If you had to describe your life in a sentence, what would it be?
brilliant apart from continous headache
Finally, what advice would you give to a person in a similar situation?
get diagnosed dont touch tramadol,indometicin .
