9

What is the life expectancy of someone with Hydrocephalus?

Life expectancy of people with Hydrocephalus and recent progresses and researches in Hydrocephalus

Hydrocephalus life expectancy

Hydrocephalus is a condition characterized by an abnormal accumulation of cerebrospinal fluid in the brain, which can lead to increased pressure and potential damage. The life expectancy of individuals with hydrocephalus can vary depending on various factors such as the underlying cause, severity of symptoms, and access to appropriate medical care.


With proper management and treatment, many individuals with hydrocephalus can lead fulfilling lives and have a normal life expectancy. Early diagnosis, timely surgical intervention, and ongoing monitoring are crucial in managing the condition effectively. It is important for individuals with hydrocephalus to work closely with healthcare professionals to ensure appropriate treatment and support.


Hydrocephalus is a condition that causes the accumulation of fluid in the cavities (ventricles) deep within the brain. The excess fluid increases the size of the ventricles and puts pressure on the brain, which can damage it. The fluid, called cerebrospinal fluid (CSF), normally flows through the ventricles and bathes the brain and spinal cord. However, in hydrocephalus, the flow or absorption of CSF is impaired, leading to backups and blockages.


Hydrocephalus can affect anyone, but it is more common in infants and older adults. The exact incidence and prevalence of hydrocephalus are not well known, but some estimates suggest that it affects about 1 in 500 to 1 in 1000 live births and about 700,000 adults in the United States.


Hydrocephalus can cause various symptoms, depending on the age of onset, the type of hydrocephalus, and the degree of pressure on the brain. Some of the common symptoms include:



  • In infants: an unusually large head, a rapid increase in head size, a bulging or tense fontanelle (soft spot on top of the head), vomiting, sleepiness, irritability, poor feeding, seizures, eyes fixed downward (sunsetting eyes), problems with muscle tone and strength

  • In older children and adults: headache, nausea, vomiting, blurred or double vision, balance problems, poor coordination, gait disturbance, urinary incontinence or urgency, cognitive problems such as memory loss, confusion, impaired concentration or reasoning

  • In older adults: gait disturbance (difficulty walking), urinary incontinence or urgency (often mistaken for aging or dementia), cognitive problems such as memory loss, confusion, impaired concentration or reasoning


The main complications of hydrocephalus are brain damage and death. Hydrocephalus can also increase the risk of developing other neurological conditions such as epilepsy, cerebral palsy, or learning disabilities.


The treatment of hydrocephalus depends on the cause, type, and severity of the condition. The main goals of treatment are to relieve the pressure on the brain and restore the normal flow or absorption of CSF. Surgery is usually required to treat hydrocephalus. The most common surgical procedure is the insertion of a shunt system that drains excess CSF from the brain to another part of the body where it can be absorbed. Another surgical option is endoscopic third ventriculostomy (ETV), which creates a hole in the floor of one of the ventricles to allow CSF to bypass a blockage. Other treatments that may be used in some cases include medications to reduce CSF production or inflammation, or repeated lumbar punctures to drain excess CSF.


There are some celebrities who have been diagnosed with hydrocephalus or have publicly shared their experience with the condition. Here are five examples:



  • Andy Warhol. Andy was an artist, filmmaker, and pop culture icon from the United States who was known for his works such as Campbell's Soup Cans (1962), Marilyn Diptych (1962), and The Factory (1963-1984). He was born with hydrocephalus and had several surgeries to treat his condition throughout his life. He also suffered from chronic headaches and vision problems as a result of his condition.

  • Jorge Posada. Jorge is a former baseball player from Puerto Rico who played as a catcher for the New York Yankees from 1995 to 2011. He won five World Series championships and was selected to five All-Star games. He has a son named Jorge Luis who was born with hydrocephalus and craniosynostosis (premature fusion of skull bones). He underwent several surgeries to treat his condition and has since recovered.

  • Tia Mowry. Tia is an actress and television personality from the United States who is known for her roles in Sister, Sister (1994-1999), The Game (2006-2015), and Family Reunion (2019-present). She also has a twin sister named Tamera who is also an actress and television personality. She was diagnosed with hydrocephalus at three years old after suffering from seizures and headaches. She had surgery to implant a shunt system that drains excess fluid from her brain.

  • Benjamin Walker. Benjamin is an actor and comedian from the United States who has appeared in films such as Abraham Lincoln: Vampire Hunter (2012), In the Heart of the Sea (2015), and The Choice (2016). He also starred in several Broadway shows such as Bloody Bloody Andrew Jackson (2010), American Psycho (2016), and All My Sons (2019). He was born with hydrocephalus and had surgery to insert a shunt system when he was six months old.

  • Shuntelle Paynter. Shuntelle is a singer and songwriter from Bermuda who has released several albums and singles such as Love Me For Me (2008), I'm Ready (2010), and I'm Still Here (2016). She was born with hydrocephalus and had surgery to implant a shunt system when she was two years old. She has said that her condition has inspired her to pursue her passion for music and to help others with similar challenges.


These are just some of the celebrities who have hydrocephalus or have spoken about it publicly. There may be others who have not disclosed their diagnosis or are not aware of it. Hydrocephalus is a serious but treatable condition that can affect anyone, regardless of age, gender, or occupation. It is important to raise awareness and educate people about the signs, symptoms, diagnosis, and treatment of hydrocephalus, as well as to support research and advocacy for better outcomes and quality of life for patients and their families.

Diseasemaps
6 answers
To my knowledge there is an indefinite time period ..

Posted Jul 28, 2017 by Richard pargeter 2150
Iif there is no malfuntion in a shunt or third ventriculostomy the life expectancy is the same as anyone who doesn't have the condition

Posted Dec 9, 2019 by Hydrocow1969 1600
my front forhead is burning up, this time i'm awake for this. two weeks ago i had 1 beer, the next day i couldn't walk, kept falling. they did a mri and found the fluid. i was angry that it was still there. 27th january 2006 930pm work put me on the mail bench, and 5 minutes later my lead hand told me i was squishing my head , like a zit. unable to do my job they moved to another area, were a video. showed me looking away from the convayer belt, then reaching out and sliding to the concrete floor, and having my 1st grandmaul siezure. i awoke in the middle of march. 2 years of rehab to be "normal" and return to work. and now it happening again 15 years later. they never put a shunt in then. my head is like a fire ball with pain swirling around to the right side if the skull. i'll be seeing a nerologist today

Posted Sep 8, 2021 by Vern 100
Una persona affetta da idrocefalo ha un aspettativa di vita pari a quella di una persona che non presenta tale patologia. Le complicanze che possono pregiudicare una normale vita possono essere anche determinate da errori umani (come nel mio caso che a causa della eccessiva lunghezza del catetere si era creato un ispessimento del liquido cefalo rachidiano)

Posted Apr 27, 2022 by Laura Pergolesi 1450
Translated from portuguese Improve translation
many mainly the fe

Posted Aug 12, 2017 by Erika 1000

Hydrocephalus life expectancy

Celebrities with Hydrocephalus

Celebrities with Hydrocephalus

2 answers
Is Hydrocephalus hereditary?

Is Hydrocephalus hereditary?

4 answers
Is Hydrocephalus contagious?

Is Hydrocephalus contagious?

5 answers
Natural treatment of Hydrocephalus

Is there any natural treatment for Hydrocephalus?

3 answers
ICD9 and ICD10 codes of Hydrocephalus

ICD10 code of Hydrocephalus and ICD9 code

3 answers
Living with Hydrocephalus

Living with Hydrocephalus. How to live with Hydrocephalus?

5 answers
Hydrocephalus diet

Hydrocephalus diet. Is there a diet which improves the quality of life of p...

5 answers
History of Hydrocephalus

What is the history of Hydrocephalus?

2 answers

World map of Hydrocephalus

Find people with Hydrocephalus through the map. Connect with them and share experiences. Join the Hydrocephalus community.

Stories of Hydrocephalus

HYDROCEPHALUS STORIES
Hydrocephalus stories
We found out at our 20 week anomaly scan that amelia-hope has spina bifida hydrocephalus and talipes. It was a very scary time. Amelia was born 20th august 2013 she had he back closure at 3 days old and she had her vp shunt fitted at 10 days old. Tou...
Hydrocephalus stories
i got hydro due to a tumour in my brain which was discovered when I was 4years old. Had 25 years without complications, but then the shunt broke and I had 10 surgeries in 1,5 years. Many failures and infections. Now I have a VA-shunt since Nov-14. I ...
Hydrocephalus stories
I developed Hydrocephalus in 2010 and it has made me A lot Stronger. I have met so many people online who also have the Condition or a Loved one so now I see that I am not alone. My Life has changed so much, Because I also had 2 Brain Surgerys in the...
Hydrocephalus stories
I have had hydrocephalus since I was 9 months old, after contrating meningitis.  I had a revision at 5 years old and 13 years ol.  I had the shunt removed in 2013.  I am 4 clases from starting my diseataion an I am a full time security guard, rais...
Hydrocephalus stories
I was born April 1982 with hydrocephalus. I had first op aged 6 months old. I am now 34 and have had 12 surgeries to date. I consider myself lucky as i really have no restrictions due to my hydro. I like running half and full marathons for charity.

Tell your story and help others

Tell my story

Hydrocephalus forum

HYDROCEPHALUS FORUM
Hydrocephalus forum
 Anyone with successfully treated low pressure hydrocephalus?  What did they do?

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map