Dominate Hand Kienbock's Mommy

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Hello, during the spring of 2013, while expecting my first child, I began to get extreme wrist pain, swelling, and loss of rotation inmy right wrist. I spoketo my obgyn, who assured me it was carpal tunnel. Being naive I took his word for it. He told me that the pain wouls go away after I gave birth and told me to wear a brace. After giving birth I ended up hving to exclusively pump for her, unfortunately with a manual pump and with my right hand, which I did for over a year through gritted teeth and tears from the pain. I switched insurances as soon as my daughter was born ans in the following year, in 2015, I got a new promary care doctor. I had been researching carpal tunnel and my symptoms didn't seem to match,  so I voiced my concerns that I didn't believe that it was carpal tunnel, but tgat something was definitely wrong. By this point I had almost lost all ra ge of motion. She agreed and put in a referal to an orthopedic surgeon. It took maybe a month to see one and at first glance of she determined it was Kienbock's Disease. She set me up immediately for an mri and a EMG and NCS test to rule out carpal tunnel. The mri revealed Kienbock's Disease at a stage 3b and the other tests ruled out carpal tunnel completely.  11 days after meeting with my orthopedic surgeon,  Dr Sharpe, I was going in for surgery, having a radial shortening and an attempted bone graft with denervation. The bone graft failed because the bone was too far gone. Two years out and my rom is so much better, my pain is at least half of what it was, and although I will need an additional surgery and possible surgeries, I am happy with what progress I have made already. I am currently a stay a home mom with a second child, who was born the Spring of 2017.