Story about Klippel-Feil Syndrome .

No neck

Aug 6, 2021

By: Julie

Year Condition Began: 1968


I was diagnosed at birth. The short neck was obvious. I was found to have double ureters later on. I also have sprengals deformity. I was picked on constantly as a child. No one else in my family has it. I have four kids and none have been diagnosed with it although I’m pushing my daughter to get tested because she was found to have hearing loss in her right ear when she was 6 and we never really knew why.
Story about Klippel-Feil Syndrome

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


A Klippel-Feil Syndrome interview

View interview


Klippel-Feil Syndrome advice

Which advice would you give to someone who has just been diagnosed wit...

Klippel-Feil Syndrome jobs

Can people with Klippel-Feil Syndrome work? What kind of work can they...

Celebrities with Klippel-Feil Syndrome

Celebrities with Klippel-Feil Syndrome

Klippel-Feil Syndrome diagnosis

How is Klippel-Feil Syndrome diagnosed?

Is Klippel-Feil Syndrome hereditary?

Is Klippel-Feil Syndrome hereditary?

Do I have Klippel-Feil Syndrome?

How do I know if I have Klippel-Feil Syndrome?

Klippel-Feil Syndrome causes

Which are the causes of Klippel-Feil Syndrome?

Klippel-Feil Syndrome treatments

What are the best treatments for Klippel-Feil Syndrome?