Short version of my medical story

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Hi there,

 

My name is Pascal, i am 28 years old and was born in The Netherlands where i still live. I all ready was late with everything, walking, sitting and at the age of 6 i was diagnosed with a no name muscular dystrophy. First time it was emery dryfus but later on in 1998 it went Limb Girdle muscular dystrophy. I had worked to my 24 after then it went backword a lot. Problems with walking, my hips schoulders and sometime's in the arm. after a lot off struggling now i have 2 ankle foot orthisis from the brand Allard Toe-off. I have also a triclye bike from the dutch company VanRaam. This is featured with an high power electrical motor in the front wheel. Otherwise it is not possible to cycle. With the bike i can do shopping and stuff like that and keeping in movement.

At the age of 27, 2014, i was diagnosed with testicular cancer. metastatics in my lymfnodes in the aorta area. Because of the muscular dystrophy medical people here in the netherlands don't wan't to give me chemcical treatment. Gladly there was an RPLD. the removed my retroperitonal lymf nodes. a full template. For now, yesterday i had a ct-scan and everything is still clean!