Story about Long QT Syndrome .

LQT - and our world turns different

Dec 20, 2015


My son has been diagnosed clinically in 2013 after experiencing several syncopes under emotional excitement. His EKG showed a prolonged QT time

Rest of family hasn't been diagnosed yet as his genetic test results went back negative. 

He was told to quit basketball and all kind of competetive sports - also at school. He's very sad and depressed.

From that day on he's taken betablockers. In 2014 he got an event recorder implanted due to another syncope under betas. 

Fortunately psychological support helped him to get over it and to manage his fears. Now he's back in his life, plays table tennis, loves to meet friends and enjoys his life. He carries his AED everywhere he goes. 

I'm Admin of the German Long-QT-Facebook group and Facebook page - both called "Herzkinder - Long QT Syndrom"

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


Prevalence of Long QT Syndrome

What is the prevalence of Long QT Syndrome?

Long QT Syndrome and depression

Long QT Syndrome and depression

Long QT Syndrome advice

Which advice would you give to someone who has just been diagnosed wit...

History of Long QT Syndrome

What is the history of Long QT Syndrome?

Living with Long QT Syndrome

Living with Long QT Syndrome. How to live with Long QT Syndrome?

What is Long QT Syndrome

What is Long QT Syndrome

Is Long QT Syndrome contagious?

Is Long QT Syndrome contagious?

Natural treatment of Long QT Syndrome

Is there any natural treatment for Long QT Syndrome?