- Medullary Sponge Kidney
- Interviews
Hollie's interview
How did all start?
2002 is had my last of 5 children. I went on a high protein diet and within 6 months was in hospital with my first stone. Since then I've been symptomatic.
Do you already have a diagnosis? How long did it take you to get it?
One year
For what medical specialties have you been treated? What has been the most useful specialty for your?
Urology is most useful
What has been the most useful thing for you so far?
Water and diet
What have been your biggest difficulties?
Pain Nausea control
How has your social and family environment reacted? Have your social or family relationships changed?
Everything has changed. I'm not the same person anymore. I'm tired and sick alot. I really don't have energy for more than what I have to do. I used to be unable to do much. Activity makes my kidney hurt.
I don't have a social life.
What things have you stopped doing?
Going out, dancing, exercise, working
What do you think about the future?
Hoping to have adequate pain control and hope to have people in my life. I also want to work.
So far, which years have been the best years in your life? What have you done during them?
Having kids when they were young and raising them. Even when I was hurting they gave me a reason to keep going.We had fun doing everything. We would go on vacation and make memories, we had parties and lived alot!
What would you like to do if you didn’t have your condition?
Get a job, get my house in order. Plan for a future working woth my husband. I could afford life if I didn't have this medical condition.
If you had to describe your life in a sentence, what would it be?
I'm thankful for my decreased pain level from following my plan. I adore my husband and family and want to have to strength to do more activities. I gave a loving family and I'm a happy person, the only thing wrong is because of this disease.
Finally, what advice would you give to a person in a similar situation?
Drink as much water as you can stand and drink it thru the night too. Keep as active as you can. Don't give up living.
