Story about Nemaline Myopathy .

NM from Holland

Aug 30, 2017

By: Mariah

Year Condition Began: 2001


In 2000 a student of an University asked my familie to help her with a study about Nemaline/

We did and our weakness had a name now. In 2011 they found the gene KB TBD13 (Chromosoom)
And we have the severe NM. number 6.

When i was young i had not many problems.
Now i am getting older i get weaker .
Also my sisters.
Story about Nemaline Myopathy

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