Story about Oral-Facial-Digital Syndrome .

My OFD

May 21, 2017


I am a 27 year old female who was born with a rare syndrome known as OFD-1 or Oral Facial Digital Syndrome Type 1. It affects my teeth, tongue, nose, fingers, toes, and scalp. I have severe TMJ. My jaws are misaligned and its very painful when I talk or eat. I have suffered serious depression my entire life but still strive to better my situation.  I have nasoseptal defect, bilateral temporomandibular joint disorder, anterior disk dislocation, maxillary hypopladia, AP and transverse discrepancy, and multiple misding teeth. I am needing to have orthognathic/Maxillofacial surgery to correct my jaw misalignment and various other facial defects.

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


Oral-Facial-Digital Syndrome prognosis

Oral-Facial-Digital Syndrome prognosis

Natural treatment of Oral-Facial-Digital Syndrome

Is there any natural treatment for Oral-Facial-Digital Syndrome?

Oral-Facial-Digital Syndrome life expectancy

What is the life expectancy of someone with Oral-Facial-Digital Syndro...

Couple and Oral-Facial-Digital Syndrome

Is it easy to find a partner and/or maintain relationship when you hav...

Oral-Facial-Digital Syndrome sports

Is it advisable to do exercise when affected by Oral-Facial-Digital Sy...

Oral-Facial-Digital Syndrome is also known as...

Oral-Facial-Digital Syndrome synonyms

Living with Oral-Facial-Digital Syndrome

Living with Oral-Facial-Digital Syndrome. How to live with Oral-Facial...

History of Oral-Facial-Digital Syndrome

What is the history of Oral-Facial-Digital Syndrome?