Story about Osteonecrosis , Ehlers Danlos.

Ready to Get My Life Back

Jun 10, 2018

By: Shelli

Year Condition Began: 2017


My daughter was born with SHOULDER DYSTOCIA which I now know is almost an obstetric red flag for medical negligence. I developed this terrible disease after I suffered the trauma of 5 nurses and doctor pulling me apart like a rag doll to get my daughter out which ultimately led me to develop stage 3 Bilateral AVN 2 years 10 months later.
It was medical negligence as I had no doctor present before the emergency code pink was called only a nurse who had me push until my daughter had crowned and ultimately got stuckI

They even asked my husband to step in and pull my right leg back over my head while two nurses pulled my left leg and another two nurses were physically on top of me trying to push my baby out and the last nurse and doctor were elbow deep pulling her out of me.

I was at risk for a larger baby because of two failed gestational diabetes tests and have extremely narrow hips but was told not to worry about this. I trusted her because she was my doctor.
I never had any health issues prior to finding out I had this disease in October of 2017 but by that time I am told my statute of limitations has run out but it is suppose to extend to 5 years if it is an incident that causes the injury and I had no problems until I finally began collapsing and was first diagnosed in October 2017.
(PLEASE Anyone reading this you can help me by sharing my story as I pray I can find a lawyer or a news outlet or anything to make my case known bc I know what has happened to me is NOT OK!)

Because right now I am being told I have a case but not one most firms will take on because of the amount of appeals a case like mine would require. So there are no legal ramifications for what was done to me...
I was a very active 31 year old stay at home Mom to a very very active little 2 year old girl who I did EVERYTHING with when I began to get shooting pains in my left hip in March of 2017.
I finally saw a doctor in June who mentioned Avascular Necrosis, as I had already developed a severe limp at this point. I cried when I googled it and decided I just wasn’t going to get the MRI and this would go away if I tried hard enough.
I pushed through excruciating pain that brought me to tears and to my knees at times and eventually this disease forced me to ask for help!
I finally went for an MRI in October and I have Stage 3 Bilateral Avascular Necrosis in both of my femoral heads with both at 75%deteriorated.
I have now flown out of state for Free Periosteal Core Decompression by Dr. Adam Saad in New Jersey but won’t know if this surgery is actually working until a year post op. And then if it works I will have to fly back to repeat the surgery on my right side.
I have a mobility chair at home to somewhat be able to play with my daughter on her bike outside but, spend the majority of my days googling this disease and treatments and ways to get my life back with my little girl.
I just pray to be able to dance and play with my 3 year old again. I pray to be able to sleep again or do anything without this constant excruciating pain. And I look forward to so many things I took for granted before this all happened. I just want my life back and am so angry that because I went into labor on Christmas I dealt with such incompetence that has severely disrupted my life and my families lives, and left me severely disabled.
Story about Osteonecrosis

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