A Primary Orthostatic Tremor interview , Primary Orthostatic Tremor.

Antonia's interview


How did all start?

A few falls slowly having problems with balance

Do you already have a diagnosis? How long did it take you to get it?

Yes although it took six years I have had

For what medical specialties have you been treated? What has been the most useful specialty for your?

I have had ENT and Nuerology but none have been useful. Medications make me too drowsy and don’t help.

What has been the most useful thing for you so far?

Nothing so far

What have been your biggest difficulties?

Mobility and sometimes my legs freeze and I can’t move.

How has your social and family environment reacted? Have your social or family relationships changed?

Very supportive and friends are great .

What things have you stopped doing?

Driving

What do you think about the future?

Try not to as I am getting worse

So far, which years have been the best years in your life? What have you done during them?

Those before I had this condition

What would you like to do if you didn’t have your condition?

Drive , shop and volunteer work .

If you had to describe your life in a sentence, what would it be?

It’s been really good

Finally, what advice would you give to a person in a similar situation?

I don’t have any still trying to manage myself . One day at a time I guess


Feb 13, 2019

By: Antonia

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