Making a determination

I don't think RP is as rare as we are led to believe. It seems many symptoms are unrelated. You go to an ortho doc for knee/joint pain. You go to an ENT for ears and throat. You go to an ophthalmologist for eyes. You go to a dermatologist for skin. This is my decade long journey. None, until a fluke visit to a dermatologist while traveling, ever put other conditions together or asked questions that would have directed any toward a common link: Relapsing Polychondritis. I'm still waiting for an appoinment with a specialist at Stanford.

Symptoms:

- Ears: red (no lobe involvement), peeling, break down of edge cartilage

- Joint pain: ankle, knee, neck and fingers

- Psoriasis (maybe): general unexplained skin rashes, bumps and inflammation

- Throat: difficulty swallowing, clicking sound, the feeling of always having something stuck

- Tinnitus

- Nose: recurring external inflammation, scabs just inside the edge

Is this what others had dealt with? Is anyone else as frustrated with medical professionals as I am?