- Sarcoidosis
- Interviews
Tami's interview
How did all start?
Misdiagnosed for years as fibromyalgia
Do you already have a diagnosis? How long did it take you to get it?
Yes three weeks
For what medical specialties have you been treated? What has been the most useful specialty for your?
Rheumatology, optomatrist so far
What has been the most useful thing for you so far?
Support group
What have been your biggest difficulties?
Dealing with what they may find after tests come back and depression
How has your social and family environment reacted? Have your social or family relationships changed?
Supportive
What things have you stopped doing?
Physical things hurt too much
What do you think about the future?
I hope there is one
So far, which years have been the best years in your life? What have you done during them?
30/40s. No pain very active
What would you like to do if you didn’t have your condition?
Feel normal
If you had to describe your life in a sentence, what would it be?
Scared, depressed, hurting, sad
Finally, what advice would you give to a person in a similar situation?
One day at a time, one test at a time, one breath at a time
