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Story about Simpson-Golabi-Behmel syndrome .

My son's journey

Jun 12, 2017

By: Candi

Simpson-Golabi-Behmel syndrome
My son was diagnosed in 2005 with a Simpson Golabi Bhemel Syndrome. It is a very rare overgrown that only affects 300 people world wide. Little is know about this and we struggle every day. I would love to know more about this this way I can share with others. 

 

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