- Visual Snow
- Interviews
Irina D.'s interview
How did all start?
It started out of nothing, i realized that i can’t read, focus as i did before. Also, i realized that other people doesn’t see like i see. My vision is covered by pulsating, flickering dots that can’t be stopped not even when i close my eyes.
Do you already have a diagnosis? How long did it take you to get it?
I diagnosed myself as a doctor, after i consulted other doctors.
For what medical specialties have you been treated? What has been the most useful specialty for your?
There is no treatment
What has been the most useful thing for you so far?
Rest, sleep
What have been your biggest difficulties?
Reading, studying, processing multiple tasks at work. Working on the computer. Expressing myself to other people, having to deal with the brain fog and tinnitus.
How has your social and family environment reacted? Have your social or family relationships changed?
My colleagues and family still doesn’t understand it completely.
What things have you stopped doing?
Reading books- i am trying but it’s a struggle, it’s awful...
What do you think about the future?
Hoping for a treatment
So far, which years have been the best years in your life? What have you done during them?
My childhood, i did what i cannot do now
What would you like to do if you didn’t have your condition?
Read all the books i have
If you had to describe your life in a sentence, what would it be?
Could be better
Finally, what advice would you give to a person in a similar situation?
Do what feels good for themselves
