A Visual Snow interview .

Khaled's interview


How did all start?

It started when I was on a plane heading back home from the UK. I waa an international student back in 2018, i noticed some vibrating dots on white walls and materials

Do you already have a diagnosis? How long did it take you to get it?

No one could diagnose me yet

For what medical specialties have you been treated? What has been the most useful specialty for your?

-

What has been the most useful thing for you so far?

- Focusing on something i love. - Going out with friends. - Not overthinking my symptoms. - Accepting the fact that there is nothing I can do to chnage that.

What have been your biggest difficulties?

- Looking at screens - Accepting my destiny. - Acting normal with friends, - Difficulty explaining my syndrome to people.

How has your social and family environment reacted? Have your social or family relationships changed?

I received huge support from my friends and family which helped me accept this syndrome and move on with my life.

What things have you stopped doing?

- Eating unhealthy. - Smoking -Overthinking.

What do you think about the future?

I hope that one day a cure can be found. I also hope that new sufferers can get the help they want and to feel alone.

So far, which years have been the best years in your life? What have you done during them?

2021, I started to move on and to accept my fate. I was a 4th year univeristy student.

What would you like to do if you didn’t have your condition?

Nothing, having this syndrome didn't affect my ability to do the things i love.

Finally, what advice would you give to a person in a similar situation?

Stay strong, you are not alone. Definetly join a community of people who suffer from the same syndrome. In addition, get support from family and friends to help you move on in life.


Mar 14, 2022

By: Khaled

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