- Anterior Cutaneous Nerve Entrapment Syndrome (ACNES)
- Interviews
Mazzy's interview
How did all start?
Year ago
Do you already have a diagnosis? How long did it take you to get it?
4 months after my first visit to my family doctor.. then I had many other test that all came back normal, I had ct scan of my abdomal , ultrasound scan looking for kidney stones , cystoscopy and uroflowmetry test for female and blood work.
For what medical specialties have you been treated? What has been the most useful specialty for your?
The injections .. "Local injection with an anesthetic and a corticosteroid is an effective treatment for anterior cutaneous nerve entrapment syndrome"
What has been the most useful thing for you so far?
Those injections .. I had 2 so far..
What have been your biggest difficulties?
Just being myself , doing my normal daily life stuff
How has your social and family environment reacted? Have your social or family relationships changed?
Not super great being mom to small child , I'm not as playful because of the discomfort it caused
What things have you stopped doing?
I stopped picking up my child is worst , such things like heavy lifting or gardening .. I'm not sure if those are causes of it .. but I think stress plays a big role but I'm not sure ..
What do you think about the future?
I'm going to go all the way in my treatments so I can live my normal life
So far, which years have been the best years in your life? What have you done during them?
All before this
What would you like to do if you didn’t have your condition?
Pick my child up and dance together
If you had to describe your life in a sentence, what would it be?
Not sure really
Finally, what advice would you give to a person in a similar situation?
Do not stop until you find a doctor to treat you.. it's so worth to try the injections.. don't be afraid to touch your body and find your trigger points , it helps the doctors very much in knowing .. try laying down and find them..
The patient is able to pinpoint the pain with one finger at the exact site at which the nerve is compressed and this is an important feature of the syndrome. Another diagnostic feature is a positive Carnett’s sign, which is useful for confirming whether pain originates from abdominal viscera or from the abdominal wall
