Story about Alport Syndrome .

A Alport Syndrome story

Aug 18, 2017


My name is Sarah I'm from East Yorkshire, England. I was diagnosed at the age of 2. I have been under the watch of hospitals my whole life. In 2010 I was told my kidney was failing a year later I was on Pd dialysis. During this time my brother also went into renal failure and was put on hemo. The doctors then started their investigation into whether me and my brother have alports syndrome. (Recently been confirmed as a rare genetic form of the condition) In 2013 I received a transplant. 

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


Alport Syndrome advice

Which advice would you give to someone who has just been diagnosed wit...

ICD9 and ICD10 codes of Alport Syndrome

ICD10 code of Alport Syndrome and ICD9 code

What is Alport Syndrome

What is Alport Syndrome

Alport Syndrome sports

Is it advisable to do exercise when affected by Alport Syndrome? Which...

Latest progress of Alport Syndrome

What are the latest advances in Alport Syndrome?

Do I have Alport Syndrome?

How do I know if I have Alport Syndrome?

Alport Syndrome cure

Does Alport Syndrome have a cure?

Alport Syndrome and depression

Alport Syndrome and depression