Oakleys Story

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Hello

I am a mum whose little boy at age 7 went through Tens due to carbamazapine. He lost 100% of his skin and all his nails and hair  he had several infections that resulted in hypothermia and the loss of part of his big toe and 3 adjoining toes lost the pads. His skin is scarred from head to toe which will need constant monitoring to make sure the scars grow with him. He's had a few operations so far to correct damage done by Tens. He is still having frequent hospital appointments and needs several procedures to help him with urology and stomach issues. He also has nerve damage in his legs that make his legs feel like he has constant pins and needles to the point it feels like electric shocks. He has chronic fatigue syndrome that sees him fall asleep at school and has affected his school work  he can't remember things like he used to either. He has had several falls and has collapsed at school. His energy levels are very low and has to resort to using a wheelchair if any distance of walking is required. You can see his story by googling Oakley Orange sjs. But he still smiles. X