Story about Central Pain Syndrome .

CPS and my brain tumor

Nov 15, 2017

By: MesaLife

Year Condition Began: 2013


I battled with fibromyalgia since 2005 when I was in ovarian failure, which I believed to be the cause of all these odd syndrome related issues. In 2006 I had to have a complete hysterectomy which threw my body into a major endocrine imbalance. The trauma of surgery made my symptoms worse. Even bio-identical hormone replacement wasn't enough to get back to feeling healthy and normal. I had such pain in my body/back that I was at the end of my rope. Some days the transient pain in my hips, arms, legs and back was so bad I was bed ridden. Other days I had to use a cane to walk and get around. Brushing my teeth made my back hurt so badly I would be in tears.
Dr's had pushed many pharmaceuticals ( lyrica, neurontin, cymbalta, etc- all made me sicker), even given me injections into my spine to no avail for relief. I would have good weeks and bad weeks. Just always pushing forward with as much of a smile as I could muster up. Most doctor's saw me as "drug seeking" and used the hysterectomy as my reason for being emotional when I spoke of the undiagnosed pain I was experiencing. My life was in shambles with 2 young children to raise and a household to maintain.

It was then I found a doctor that took my full medical history seriously. She wanted to find the root cause not treat a symptom. I was finally given an MRI in 2013 to rule out Multiple Sclerosis. That's when they found an inoperable brain tumor on my brain stem. My neurosurgeon offered zero help. A month later I was diagnosed with malignant melanoma and was in fear for my life. Again, another surgery for the melanoma with sentinel lymph node removal - increasing the stress on my body. My pain levels were off the charts in the following months.

My family doctor is a functional medicine doc, not an allopathic doctor. She recommended medical cannabis. I use the highly concentrated oil at night ( think Rick Simpson oil type) , rotating a pure THC oil for night and during the day a pure CBD oil ( ingested in a capsule) for day time. Zero psychoactive effects with CBD so I am feeling normal during the day. It has helped to a degree but not completely. On occasion, I still have to take a dose of pain medicine ( 5mg vicoden) to get through daily household chores.

I maintain an organic healthy diet. No gluten, high protein and non GMO. I do yoga and stretching exercises daily and maintain a low weight only because pain causes me not to have much of an appetite. I use meditation to help control stress and do my best to live in gratitude, for someone else always has it worse. Sometimes I feel it's the gratitude in Heart that keeps me alive. Blessings and good health to all who read my story. Thank you.
Story about Central Pain Syndrome

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


A Central Pain Syndrome interview

View interview


What is Central Pain Syndrome

What is Central Pain Syndrome

Is Central Pain Syndrome hereditary?

Is Central Pain Syndrome hereditary?

Living with Central Pain Syndrome

Living with Central Pain Syndrome. How to live with Central Pain Syndr...

Do I have Central Pain Syndrome?

How do I know if I have Central Pain Syndrome?

Central Pain Syndrome diet

Central Pain Syndrome diet. Is there a diet which improves the quality...

Latest progress of Central Pain Syndrome

What are the latest advances in Central Pain Syndrome?

History of Central Pain Syndrome

What is the history of Central Pain Syndrome?

Natural treatment of Central Pain Syndrome

Is there any natural treatment for Central Pain Syndrome?