Story about Choroideremia .

my son who is 16

May 29, 2017

By: Gina


We found out he had CHM this year.  has some issues at night  otherwise he is doing pretty well.  we have been to PA to see Dr. Aleman and doing a history study there and in Dallas Tx.  my father was diagnosed with RP 40 some years ago...secere night blindness and limited tunnel vision.  he is being tested for CHM as we think he was misdiagnosed 

Know someone who should read this story? Share it

1 comment
0

Hello my friends,

here is Michael from Germany. Are you in contact with the CRF our organization in the states?

they can give you a lot of information or check our homepage.

have a nice evening

 

 

Commented 6 years ago Michael Längsfeld 110

Login or register to leave a comment


History of Choroideremia

What is the history of Choroideremia?

Choroideremia treatments

What are the best treatments for Choroideremia?

ICD9 and ICD10 codes of Choroideremia

ICD10 code of Choroideremia and ICD9 code

Choroideremia prognosis

Choroideremia prognosis

Choroideremia cure

Does Choroideremia have a cure?

Celebrities with Choroideremia

Celebrities with Choroideremia

Couple and Choroideremia

Is it easy to find a partner and/or maintain relationship when you hav...

Choroideremia jobs

Can people with Choroideremia work? What kind of work can they perform...