2. Chronic Fatigue Syndrome / M.E.
3. Interviews

FatiguedFarmer's interview

For what medical specialties have you been treated? What has been the most useful specialty for your?

Being treated for MCAS has had the most positive overall effect on my health. MCAS exacerbates my hyperPOTS and ME/CFS symptoms significantly, and when those 2 flare, it helps to manage my MCAS immediately and as strongly as possible so as to reduce or even avoid PEM completely.

What have been your biggest difficulties?

Finding an MD or specialist who knew about, believed or fully understood MCAS and its possible severity.

What things have you stopped doing?

I gave up planning a career and any progression. I gave up all outdoor activities, all of which I used to enjoy so much and still wish I could do. I can’t see friends and I’m missing meeting their babies and watching them grow.

What do you think about the future?

I’m basically preparing for things to overall get worse, both in terms of my health and global issues (including climate change and unrest), so I try not to think too much about the future.

Finally, what advice would you give to a person in a similar situation?

Don’t wear yourself out looking for answers. Make sure you take breaks when you need to, but never give up searching.