- Chronic Fatigue Syndrome / M.E.
- Interviews
Rochelle's interview
How did all start?
After a couple years of major stress, my cognitive functions became severely affected and I became exhausted after very little exertion.
Do you already have a diagnosis? How long did it take you to get it?
Took 5 years to finally get a diagnosis, and now have to wait up to two more years to see a specialist. My GP seems to want to distance himself from treating it, and I feel left to handle it all on my own
For what medical specialties have you been treated? What has been the most useful specialty for your?
Waiting to see an ME/CFS specialist, as well as a neurologist for dysautonomia symptoms. Haven’t seen any specialist yet, so can’t say who is the most helpful
What has been the most useful thing for you so far?
Reading the latest developments in the research into the condition, connecting with others who have it through FB groups, and taking the course through CFIDSselfhelp.org to learn how to pace and not crash as often
What have been your biggest difficulties?
Learning to limit my physical and mental exertion to prevent crashing
How has your social and family environment reacted? Have your social or family relationships changed?
I have become quite isolated due to people not understanding, as well as due to the changes in my tolerance to social and auditory stimuli
What things have you stopped doing?
Stopped being in crowds, stopped working, stopped most social things, stopped most travelling
What do you think about the future?
I’m anxious about the future as I don’t want to live like this for the rest of my life. I am optimistic, though, as there is much more awareness about ME/CFS and a lot more research coming on board. I hope to one day live life fully again!
What would you like to do if you didn’t have your condition?
Travel, do sports, go back to school, socialize, start a new relationship. Basically, live life fully!
Finally, what advice would you give to a person in a similar situation?
Be kind to yourself, listen to your body, advocate for what you need, connect with others, and learn how to live within your energy envelope so you aren’t on the rollercoaster of push-and-crash
