Story about Coffin Siris Syndrome .

Declan

Jan 16, 2020

By: Declan

Year Condition Began: 2010


Declan was diagnosed with CSS in 2018. He also has a diagnosis of ADHD.
Early in his life we were told that he may never walk/talk or be independent. He is now (nearly) 10. He goes to a regular school in a special needs class but also spends a lot of time in a regular class room. Although he is behind he is always progressing and tries very hard. He also loves riding his motorbike and mountain bike even though he has hypotonia.
He surprises us everyday.

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