- Cyclic vomiting syndrome
- Interviews
Chloe's interview
How did all start?
Puberty, hormones seemed to trigger it.
Do you already have a diagnosis? How long did it take you to get it?
years. Got a diagnoses couple months ago!
For what medical specialties have you been treated? What has been the most useful specialty for your?
My gastroenterologist had no clue.
What has been the most useful thing for you so far?
CBD,THC
Amitriptyline
What have been your biggest difficulties?
The fatigue is the worst. It's crippling and is the biggest strain on my social life and relationships. My main out going is the supermarket but some weeks I can't even do that without feeling faint, weak and needing to sit down. If I get my heart rate up I feel nauseated and overheated. this can lead to an attack.
How has your social and family environment reacted? Have your social or family relationships changed?
I don't go out anymore because of the fatigue. I can't drink either so I don't get invited to social gatherings as much.
What things have you stopped doing?
I used to have lots of hobbies and now I have none. Bed is my hobbies.
What do you think about the future?
As long as I keep swimming it will be ok. I'm scared about it getting worse, every year it gets more aggressive. I have a lot of hope
So far, which years have been the best years in your life? What have you done during them?
The years before my puberty. I'm hoping I have better years ahead!
What would you like to do if you didn’t have your condition?
I would become a nurse. I want to look after other people who need it. If I get better I'll start studying.
If you had to describe your life in a sentence, what would it be?
"I'm sorry please don't mind me, *retching* "
Finally, what advice would you give to a person in a similar situation?
Working with a doctor who understands CVS is the first step. Getting on amiltriptyline (or other similar drugs) and the mito-cocktail is second (Amil,coq10, l-carn) . Adapting is the third. Cut out all the possible triggers for you.
