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Story about Cystinosis .

Mum of 2 girls with cystinosis

Jul 28, 2017

By: Hélène

Cystinosis
My 2 daughters Alix ( born in 2016) and Helga (born in 2017) have cystinosis. They are threated in Robert Debré  (Paris) and are both with Cystagon. 

 

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