A Cystinuria interview .

Hayley's interview


How did all start?

I became septic

Do you already have a diagnosis? How long did it take you to get it?

Yes, I had mine right after the first surgery

What has been the most useful thing for you so far?

Finding a group to talk to

What have been your biggest difficulties?

The stones act up in the great so I don't get a lot sun time

How has your social and family environment reacted? Have your social or family relationships changed?

They all like to Google and tell me what they've learned

What things have you stopped doing?

Eating meat cheeses and animal byproducts


Feb 14, 2018

By: Hayley

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