Story about Dravet Syndrome .

Madolynn

Dec 2, 2


We got Madolynn's diagnosis whe she was about 8 months old. At this time she had only 1 seizure, but it was the "big one". Her seizure that July night lasted over an hour before she was sedated enough to meek it stop. To date, we still have a fairly low GTC count (about) but she suffers from myoclonics daily. She recently has also stared having complex partials. Madolynn takes keppra and onfi daily and uses diazepam as a rescue. Currently no significant developmental delays are noted.

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


Dravet Syndrome and depression

Dravet Syndrome and depression

Is Dravet Syndrome contagious?

Is Dravet Syndrome contagious?

Dravet Syndrome diet

Dravet Syndrome diet. Is there a diet which improves the quality of li...

Dravet Syndrome life expectancy

What is the life expectancy of someone with Dravet Syndrome?

Dravet Syndrome cure

Does Dravet Syndrome have a cure?

Dravet Syndrome symptoms

Which are the symptoms of Dravet Syndrome?

Natural treatment of Dravet Syndrome

Is there any natural treatment for Dravet Syndrome?

Couple and Dravet Syndrome

Is it easy to find a partner and/or maintain relationship when you hav...