This condition has multiple ways it can both manifest, present and possibly progress. There are a hallmark of symptoms based on the location and presentation snd no two individuals are alike.
Vary depending on location, size, and overall presentation as no two individuals are alike. However pain is characterized in this disease
Treatments
Surgery, decompression through surgery, shunt, pain medication/modalities
Specialist who treat it
General PracticeGenitourinary MedicineNeurologyNeurosurgeryNursingOphthalmologyPalliative Medicine/ CarePharmacologyPhysical medicine and rehabilitationPhysiotherapyPneumology/Pulmonology/ Respiratory MedicineRheumatologySports and exercise medicine
Hello Everyone!
My name is Beth Nguyen RN, CEO of Worldwide Syringomyelia & Chiari Task Force. I am 38 years old with a diagnosis of Syringomyelia, Intracranial Hypertension, POTS dysautonomia, Heart Failure, and Pulmonary Hypertension.&nb...
In 2007 I was diagnosed while pregnant with my son. I remember the dr calling and saying I had a rare condition called syringomyelia and I said syringo-what? I remember that phone call like it was yesterday. I was told I needed surgery ASAP but they ...
I developed a syrinx from t1 - t8. Loss of temperature feeling in left arm, shooting pains down left arm. Had a shunt placed, post surgery had sensory loss down left side and in my right leg. The shunt failed and the syrinx was growing fast again. We...
I was in a car accident on july 10th 1999 and was ejected through the windshield. It wasn't until 2006 that I became symptomatic and was disabled permanently in 2008. I have syrinx in thorasic and cervical and have had a drain placed in the cervical ...
65 people with Syringomyelia have taken the SF36 survey. Mean of Syringomyelia is 1120 points (31 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
Symptoms
Treatments
