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What is the prevalence of Idiopathic Hypersomnia?

How many people does Idiopathic Hypersomnia affect? Does it have the same prevalence in men and women? And in the different countries?

Prevalence of Idiopathic Hypersomnia

The prevalence of Idiopathic Hypersomnia is estimated to be around 0.02% to 0.18% of the general population. It is a rare sleep disorder characterized by excessive daytime sleepiness and difficulty waking up, even after a full night's sleep. Individuals with idiopathic hypersomnia often struggle with maintaining alertness during the day, which can significantly impact their daily functioning and quality of life. Diagnosis and treatment options for this condition are available, and it is important to consult a healthcare professional for proper evaluation and management.



Idiopathic Hypersomnia is a neurological sleep disorder characterized by excessive daytime sleepiness and prolonged sleep duration. It is a relatively rare condition, and its prevalence is not well-established due to underdiagnosis and misdiagnosis.


However, studies suggest that the prevalence of Idiopathic Hypersomnia is estimated to be around 0.02% to 0.05% of the general population. This means that out of every 10,000 individuals, approximately 2 to 5 people may be affected by this disorder.


Idiopathic Hypersomnia typically begins during adolescence or early adulthood and can persist throughout a person's life. It is often misdiagnosed as other sleep disorders, such as narcolepsy or chronic fatigue syndrome, which further complicates determining its true prevalence.


While the exact cause of Idiopathic Hypersomnia is unknown, it is believed to involve abnormalities in the central nervous system. The symptoms can significantly impact an individual's daily functioning, leading to difficulties in work, education, and social interactions.


Early recognition and proper diagnosis are crucial for managing Idiopathic Hypersomnia. Treatment options include stimulant medications, lifestyle modifications, and scheduled napping to help alleviate excessive sleepiness and improve quality of life.


Diseasemaps
3 answers
Although the true prevalence of idiopathic hypersomnia is unknown, it is estimated at 1/10,000 – 1/25,000 for the long sleep form and 1/11,000 to 1/100,000 without long sleep.

Posted Jun 6, 2017 by Candice 2150
A true figure and knowledge of the prevalence of idiopathic hypersomnia is unknown, but it is estimated at 1/10,000 – 1/25,000 for the long sleep form and 1/11,000 to 1/100,000 without long sleep.

Posted Jun 7, 2017 by Sarah 2050

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Stories of Idiopathic Hypersomnia

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IH is hard  to explain to anyone and nobody believes you anyways. I was always tired and they ran every single test I could think of and finally one day a doctor suggested I get a sleep study done.  The sleep study showed nothing so they set me up ...
Idiopathic Hypersomnia stories
I ha e been dealing with IH for 10 years before being diagnosed. Started when I was 19 and having a hard time staying away while driving and only got worse as time went on. Many many test and many army doctor not listening or just putting it up to an...
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J'ai etait diagnostiquer HI il y a 1 ans. 
Idiopathic Hypersomnia stories
Idiopathic Hypersomnia stories

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https://sleepandbleep.weebly.com/   Visit my new website and help me build a supportive community. My goal is to provide a one-stop-shop for those with IH to seek advice from others going through similar circumstances, promote self-advocac...

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