- Loeys Dietz syndrome
- Interviews
Tracia's interview
How did all start?
Always been hypermobile with various dislocation, heart mitrial prolapse at 40, dissection a&b in 2012
Do you already have a diagnosis? How long did it take you to get it?
Diagnosed 2013
What has been the most useful thing for you so far?
Over coming fear
What have been your biggest difficulties?
Passing it to my children
How has your social and family environment reacted? Have your social or family relationships changed?
No
What things have you stopped doing?
Can't walk great distances or lift anything heavier than 2 kg
What do you think about the future?
Glad to be here
So far, which years have been the best years in your life? What have you done during them?
Having 4 kids, Walking, construction, running my own business
What would you like to do if you didn’t have your condition?
Live as before
If you had to describe your life in a sentence, what would it be?
Restricted
Finally, what advice would you give to a person in a similar situation?
Live on day at a time
